Tell me about the pumps – the pros and cons. Is it possible to change the pump whilst keeping the same PEG and tube that’s already in place for the bowel? Where can I find information about the Duodopa pump? I’ve had one for a year but would like more information and someone to discuss it with or compare notes with. Are there any support groups? 

The pumps (there are several different types) have the advantage of delivering a steady level of medication, so that symptoms are managed continuously, thereby reducing fluctuations in symptoms. The downside is that the treatments are ‘invasive’ (via a plastic cannula under the skin or a tube to the stomach) and that you need to carry the pump with you. Yes, you can switch between the Duodopa and Lecigon levodopa pumps whilst keeping the same PEG tube system. You just need to make a few minor adjustments to the connection. There is a website where the company that manufactures Duodopa provides information: https://duodopapatient.se/leva-med-duodopa/ and an American version here: https://www.duopa.com/  Previously (before the COVID-19 pandemic), ‘pump meetings’ were organised in Sweden to provide information about the treatments and give people the chance to meet up. There are plans (now for 2023) to organise new ones.

Dag Nyholm